Privacy Policy

We are committed to promoting privacy and protecting the confidentiality of the health information we hold about you.

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Your Privacy

Everyone here is bound by confidentiality. We have to protect your information from loss or theft and make sure no one looks at it or does something with your information if they are not involved with your care or allowed as part of their job. If there is a privacy breach, we will tell you (and we are required by law to tell you).

Your Health Record

Your health record includes information relevant to your health including your date of birth, contact information, health history, family health history, details of your physical and mental health, record of your visits, the care and support you received during those visits, results from tests and procedures, and information from other health care providers.

Your record is our property, but the information belongs to you.

With limited exceptions, you have the right to access the health information we hold about you, whether in the health record or elsewhere.

You can request a copy of your record. If you wish to view the original record, one of our staff members must be present. If you need a copy of your health record, please contact our Privacy Officer or ask a Society personnel who will explain the process. In rare situations, you may be denied access to some or all of your record (with any such denial being in accordance with applicable law).

We try to keep your record accurate and up-to-date. Please let us know if you disagree with what is recorded, and in most cases we will be able to make the change or otherwise we will ask you to write a statement of disagreement and we will attach that statement to your record.

Our Practices

We collect, use and disclose (meaning share) your health information to:

Treat and care for you
Provide services to you
Provide appointment or preventative care reminders to you and/or send client surveys to you
Update you of upcoming events, activities and programs
Coordinate your care with your other health care providers including through shared electronic health information systems such as Ontario Health Teams, Ontario Laboratory Information Systems (OLIS), HealthLinks, Connecting Ontario, AlayaCare, and local, regional and provincial programs
Deliver and evaluate our programs
Plan, administer and manage our internal operations
Be paid or process, monitor, verify or reimburse claims for payment
Conduct risk management, error management and quality improvement activities
Educate our staff and students
Dispose of your information
Seek your consent (or consent of a substitute decision-maker) where appropriate
Respond to or initiate proceedings
Conduct research (subject to certain rules)
Compile statistics
Allow for the analysis, administration and management of the health system
Comply with legal and regulatory requirements
Fulfill other purposes permitted or required by law

Our collection, use and disclosure (sharing) of your personal health information is done in accordance with Ontario law.

Your Choices and Who Decides

You have a right to make choices and control how your health information is collected, used, and disclosed, subject to some limits.

You may make your own decisions if you are “capable”. Your health care provider will decide if you are capable based on a test the law sets out. You may be capable of making some information privacy decisions and not others. If you are not capable – you will have a substitute decision-maker who will make your information decisions for you. Who can act as a substitute decision-maker and what they have to do is also set out in law.

We assume that when you come to have health care from us, you have given us your permission (your consent) to use your information, unless you tell us otherwise. We may also collect, use and share your health information in order to talk with other health care providers about your care unless you tell us you do not want us to do so.

You have the right to ask that we not share some or all of your health records with one or more of our team members or ask us not to share your health record with one or more of your external healthcare providers (such as a specialist). This is known as asking for a “lockbox”. If you would like to know more, please ask us for a copy of our “Client Lockbox Information Brochure: How to Restrict Access to your Health Record”. If you request restrictions on the use of and disclosure of your health record, a member of our team will explain your choices and the potential repercussions for those options.

There are other cases where we are not allowed to assume we have your permission to share information. We may need permission to communicate with any family members or friends with whom you would like us to share information about your health (unless someone is your substitute decision-maker). For example, we will also need your permission to give your health information to your insurance company. If you have questions, we can explain this to you.

When we require and ask for your permission, you may choose to say no. If you say yes, you may change your mind at any time. Once you say no, we will no longer share your information unless you say so. Your choice to say no may be subject to some limits.

BUT there are cases where we may collect, use or share your health information without your permission, as permitted or required by law. For example, we do not require your permission to use your information for billing, risk management or error management, and quality improvement purposes. We also do not need your permission to share your health information to keep you or someone else safe. This is to eliminate or reduce a significant risk of serious bodily harm; or to meet reporting obligations under other laws such as for the health protection of communicable diseases, child safety or safe driving.

Questions or Complaints

If you would like a copy of our Client Privacy Policy, download here.

We encourage you to contact us with any questions or concerns you might have about our privacy practices. You can reach our Privacy Officer at:

Privacy Officer
Alzheimer Society of Ontario
20 Eglinton Avenue West, Suite 1600
Email: privacy@alzon.ca
Phone: 416-322-6560

If, after contacting us, you feel that your concerns have not been addressed to your satisfaction, you have the right to complain to the Information and Privacy Commissioner of Ontario. The Commissioner can be reached at:

Information and Privacy Commissioner of Ontario
2 Bloor Street East, Suite 1400
Toronto, Ontario M4W 1A8
1-800-387-0073
or visit the IPC website via www.ipc.on.ca